Why We Do This
Until I traveled this path, I was unaware of the financial costs involved in therapy.
My health insurance explanation of benefits states that it will cover around 20 sessions in a calendar year. Unless the therapy is rehabilitative in nature, those allotted sessions become non-existent. Therapy is covered if a child is regaining an ability that was lost. Most children that need speech therapy or occupational therapy are not restoring or regaining ability because they never developed the skill to begin with.
Some parents pay more in therapy monthly than on their mortgage payment. The truth is that it is costly. It is a sacrifice, but every child is worth every penny spent on occupation and speech therapy. Every child deserves the best opportunity to be successful in life. Early intervention is key to setting children up for a successful future. I hope to create awareness in our community and country and help as many children as possible through this fund. If you would like to help support our mission, please consider making a direct donation to the Upside Down Artist Fund. 100% of your donation is tax deductible.
The Upside Down Artist Fund
I hope to be able to assist families that need services and cannot otherwise afford them. 50% of all of all proceeds from her artwork will be donated to The Upside Down Artist Fund. It is a non-profit fund that we created along with her school to help other children receive funding for therapy.
The most important sentence I was taught in college was, "You are your child's best advocate." I have repeated those words to myself after every test that was run and every doctor we visited. Those words helped me press on when we didn't get answers and no one knew where to send us. Those words helped me pick up the phone and call our pediatrician repeatedly for a new referral because we needed answers. Those words kept me from falling apart while waiting for her to wake up from anesthesia after a MRI. I felt guilty for putting Madison through so much to find answers. I considered giving up and cancelling appointments. But, I knew she needed me. I knew she needed me to advocate for her. I knew I wasn’t sending her to school to fail, but to receive accommodations for her unique abilities. One of the doctors we visited in our journey was a pediatric neurologist. I was devastated when he told me that he has never seen this before and she will need to be in a special education class. Those are very hard words to swallow. I look at Madison's disabilities as a blessing. I think that she has an amazing gift to see literature and art in a different view than the rest of the world. I love her uniqueness. I saved every piece of art and writing because I knew it wasn't typical. I loved picking her up from school and finding in her backpack an upside down Spider with eight legs coming out of the spider’s head. I am perfectly okay with my child not being typical. I do not want her to feel shame for having a disability. I have decided to celebrate her rare talent and share her artwork/writing with others. It is beautiful and amazing. My hope is that parents with children will embrace their children's disabilities and treat them as a gift. As a mom, I encourage you to never give up and remind you "YOU are your child's best advocate."
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The Upside Down Artist Mission
Our mission is to help provide funding for occupational and speech therapy to children in our community.